(In)visibilities About the Vulnerabilities of People with Visual Impairments to Disasters and Climate Change: A Case Study in Cuiabá, Brazil

Abstract

People with visual impairments (PwVI) represent a heterogeneous social group who often experience significant disabling barriers in exercising their rights throughout their life course. Understanding dimensions of vulnerability of PwVI to disasters and climate change is an important issue to reduce the culture of neglected disasters. To date, few studies have analyzed visual impairment and disaster risk reduction (DRR) in the countries of Latin America and the Caribbean. This exploratory qualitative research project analyzed how to include PwVI in the DRR policies of Brazil. The research question is: how can we include PwVI in the discussion of DRR and climate change? The response to this question is part of a joint effort that involved a university, a hazard monitoring agency, and three institutions that work with PwVI. The three main results of the project are: (1) a mapping method to identify the exposure of PwVI to landslides and floods, and to create tactile risk maps tailored to them; (2) incorporating the voices of PwVI regarding their vulnerabilities and capacities with respect to disasters and climate change, achieved through shared interaction during 15 face to face interviews and one workshop attended by 100 people; and (3) an initiative of inclusive education to reduce some of the disabling barriers that intensify vulnerability.

Keywords

Brazil / Climate injustice / Disaster risk / Environmental education / Inclusive education / Sight impairment

References

[1] Abbott D, Porter S. Environmental hazard and disabled people: From vulnerable to export to interconnected. Disability & Society, 2013, 28(6): 839-852

[2] Bell SL, Leyshon C, Phoenix C. Negotiating nature's weather worlds in the context of life with sight impairment. Transactions of the Institute of British Geographers, 2019, 44(2): 270-283

[3] Bennett D. Five years later: Assessing the implementation of the four priorities of the Sendai framework for inclusion of people with disabilities. International Journal Disaster Risk Science, 2020, 11(1): 155-166

[4] Brasil. 1996. Law no. 9.394, December 20th 1996. Directives for and foundations of national education (Lei n. 9.394, de 20 de dezembro de 1996. Diretrizes e bases da educação nacional). http://www.planalto.gov.br/ccivil_03/Leis/l9394.htm. Accessed 15 Dec 2021 (in Portuguese).

[5] Brasil. 1999. Law no. 9.795, April 27th 1999. National politics of environmental education (PNEA) (Lei n. 9.795, de 27 de abril de 1999. Política nacional de educação ambiental). http://www.planalto.gov.br/ccivil_03/LEIS/l9795.htm. Accessed 10 Nov 2021 (in Portuguese).

[6] Brasil. 2008. National Climate Change Plan (Plano Nacional da Mudança Climática). https://antigo.mma.gov.br/estruturas/smcq_climaticas/_arquivos/plano_nacional_mudanca_clima.pdf. Accessed 10 Oct 2021 (in Portuguese).

[7] Brasil. 2009. Legislative Decree n. 186, July 09th 2008: Decree n. 6.949, August 25th 2009. Convention on the rights of persons with disabilities: Optional protocol to the convention about the rights of persons with disabilities (Decreto Legislativo n. 186, de 09 de julho de 2008: Decreto n. 6.949, de 25 de agosto de 2009. Convenção dos Direitos da Pessoa com Deficiência: Protocolo Facultativo à Convenção sobre os Direitos da Pessoa com Deficiência). http://www.planalto.gov.br/ccivil_03/_ato2007-2010/2009/decreto/d6949.htm. Accessed 15 Feb 2018 (in Portuguese).

[8] Brasil. 2012a. Law no. 12.608, 10 April 2012a. National policy on civil defense and protection (PNPDEC) (Lei n. 12.608, 10 de abril de 2012a. Política nacional de proteção e defesa civil). http://www.planalto.gov.br/ccivil_03/_ato2011-2014/2012/lei/l12608.htm. Accessed 10 Oct 2021 (in Portuguese).

[9] Brasil. 2012b. Convention on the rights of persons with disabilities: Optional protocol to the convention on the rights of persons with disabilities: Legislative decree no. 186 of 9 July 2008: Decree no. 6,949 of 25 August 2009 (Convenção sobre os Direitos das Pessoas com Deficiência: Protocolo Facultativo à Convenção sobre os Direitos das Pessoas com Deficiência: Decreto Legislativo nº 186, de 09 de julho de 2008: Decreto nº 6.949, de 25 de agosto de 2009). https://sisapidoso.icict.fiocruz.br/sites/sisapidoso.icict.fiocruz.br/files/convencaopessoascomdeficiencia.pdf. Accessed 25 Jan 2022 (in Portuguese).

[10] Brasil. 2013. General national curriculum guidelines for basic education (Diretrizes curriculares nacionais gerais da educação básica). Brasília: Ministry of Education, Secretary of Basic Education, Department of Curricula and Integral Education (in Portuguese).

[11] Brasil. 2021. Law no. 14.126, 22 March 2021. Classifies monocular vision as sensory impairment, of the visual type (Lei n. 14126, de 22 de março de 2021. lassifica a visão monocular como deficiência sensorial, do tipo visual). http://www.planalto.gov.br/ccivil_03/_ato2019-2022/2021/lei/L14126.htm. Accessed 25 Jan 2022 (in Portuguese).

[12] Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology, 2006, 3(2): 77-101

[13] Cabral, D., and D. Peixoto. 2014. Sectorization of areas at high and very high geological risk: Urban area in the city of Cuiabá, Mato Grosso (Setorização de áreas em alto e muito alto risco geológico: área urbana do município de Cuiabá, MT). Institutional Repository of Geosciences. CPRM. https://bit.ly/3f0cWUW. Accessed 10 Jan 2018 (in Portuguese).

[14] Collucci, C. 2017. Disabled people are victims in 1 of every 10 rapes registrated in the country (Deficientes são vítimas de 1 em cada 10 estupros registrados no país. Folha de São Paulo). https://bit.ly/30YkAGP. Accessed 10 Jan 2018 (in Portuguese).

[15] Coordenadoria Estadual de Defesa Civil de São Paulo (State Civil Defense Coordination of São Paulo. 2008. Rescue meeting for people with disabilities in a risk area (Reunião de resgate de pessoas com deficiência em área de risco). São Paulo, Brazil: Coordenadoria Estadual de Defesa Civil Casa Militar. http://www.defesacivil.sp.gov.br/?p=3654. Accessed 25 Oct 2018 (in Portuguese).

[16] Dorina Nowill Foundation. n.d. What is low vision? (O que é visão subnormal ou baixa visão?). https://fundacaodorina.org.br/a-fundacao/pessoas-cegas-e-com-baixa-visao/o-que-e-visao-subnormal-ou-baixa-visao/. Accessed 21 Jan 2022 (in Portuguese).

[17] de Assis Dias MC, Saito SM, dos Santos Alvalá RC, Stenner C, Pinho G, Nobre CA, de Souza Fonseca MR, Santos C Estimation of exposed population to landslides and floods risk areas in Brazil, on an intra-urban scale. International Journal of Disaster Risk Reduction, 2018, 31: 449-459

[18] Freire P. Pedagogy of hope: A reunion with the pedagogy of the oppressed (Pedagogia da Esperança: um reencontro com a Pedagogia do Oprimido), 1992, Rio de Janeiro: Peace and Earth

[19] Geraldi, D. 2009. Visually impaired people: From stigma to the limitations of daily life in risk and disaster-prone circumstances related to rain (Pessoas com deficiência visual: do estigma às limitações da vida cotidiana em circunstâncias de riscos e de desastres relacionados às chuvas). In Sociology of disasters—Constructions, interfaces and perspectives in Brazil (Sociologia dos desastres—Construção, interfaces e perspectivas no Brasil), ed. N. Valencio, M. Siena, V. Marchezini, and J.C. Gonçalves, 107–118. São Paulo, Brazil: RiMa Editora (in Portuguese).

[20] Good GA. Emergency plans in schools: Individualised disaster planning for students with impaired vision. Journal of the South Pacific Educators in Vision Impairment, 2016, 8: 17-28.

[21] Good GA, Phibbs S, Williamson K. Disoriented and immobile: The experiences of people with visual impairments during and after the Christchurch, New Zealand, 2010 and 2011 Earthquakes. Journal of Visual Impairment & Blindness, 2016, 110(6): 425-435

[22] Gil, A.C. 2009. Case study (Estudo de caso). São Paulo, Brazil: Editora Atlas (in Portuguese).

[23] Gutnik, A., and M. Roth. 2018. Disability and climate change: How climate-related hazards increase vulnerabilities among the most at risk populations and the necessary convergence of inclusive disaster risk reduction and climate change adaptation. Lyon, France: Humanity & Inclusion. https://bit.ly/3zEzwZQ. Accessed 27 Jul 2021.

[24] Hardoim, E.L., D.E. Mansilla-Pedrotti, G.R.N.S. Gomes, and T.F.L. Hardoim. 2013. The inclusive education and the principles of the Earth Charter: A profitable dialogue in the search for social justice (A Educação inclusiva e os Princípios da Carta da Terra: um profícuo diálogo na busca da justiça social). In School, community and environmental education: Reinventing dreams, building hope (Escola, comunidade e educação ambiental: Reinventando sonhos, construindo esperança), ed. M. Sato, G. Gomes, and R.A. Silva, 183–201. Cuiabá, MT: SEDUC (in Portuguese).

[25] IBGE (Instituto Brasileiro de Geografia e Estatística). 2010. Population census (Censo Populacional). https://www.ibge.gov.br/en/statistics/social/health/18391-2010-population-census.html?=&t=o-que-e. Accessed 20 Jan 2021 (in Portuguese).

[26] IBGE (Instituto Brasileiro de Geografia e Estatística). 2022. Cities (Cidades). https://cidades.ibge.gov.br/brasil/mt/cuiaba/panorama. Accessed 25 Jan 2022 (in Portuguese).

[27] Jodoin S, Lofts KA, Ananthamoorthy NA. A disability rights approach to climate governance. Ecology Law Quarterly, 2020, 47(1): 73-115.

[28] Kelman I. Climate change and the Sendai framework for disaster risk reduction. International Journal of Disaster Risk Science, 2015, 6(2): 117-127

[29] Kelman I. Disaster by choice: How your actions turn natural hazards into catastrophes, 2020, Oxford: Oxford University Press

[30] Kharade K, Ha H, Ubale A. Empowering students with visual impairment to prepare for disasters via differentiated instruction technique: A case study in India. International Journal of Special Education, 2017, 32(3): 567-585.

[31] Marchezini, V., B. Wisner, L.R. Londe, and S.M. Saito. 2017. Introduction (Introdução). In Reduction of vulnerability to disasters: From knowledge to action (Redução da Vulnerabilidade a Desastres: do Conhecimento à Ação), ed. V. Marchezini, L.R. Londe, S.M. Saito, and B. Wisner, 45–53. São Carlos: Rima (in Portuguese).

[32] Marengo, J.A. 2009. Climate change: Detection and future scenarios for Brazil until the end of the 21st century (Mudanças Climáticas: Detecção e Cenários futuros para o Brasil até o final do século XXI). In Weather and climate in Brazil (Tempo e Clima no Brasil), ed. I. Cavalcanti, N. Ferreira, M.A. Silva Dias, and M.A. Justi, 408–424. São Paulo: Oficina dos Textos.

[33] Mato Grosso, State of. Secretaria de Estado de Educação. 2010. Curricular guidelines: Educational diversities (Orientações curriculares: Diversidades educacionais). Cuiabá, Mato Grosso: Defanti (in Portuguese).

[34] NUPDEC/Cuiabá (Center for Civil Defense and Protection). 2017. Cuiabá-MT: Civil defence risk areas map. Cuiabá, Brazil: NUPDEC.

[35] O’Keefe P, Westgate K, Wisner B. Taking the naturalness out of natural disasters. Nature, 1976, 260(5552): 566-567

[36] Pallotta, M. 2018. Extremes of temperature in the Center-South of Brazil: Climatology, synoptic patterns and impacts on thermal comfort (Extremos de temperatura no Centro-Sul do Brasil: Climatologia, padrões sinóticos e impactos ao conforto térmico). Doctoral dissertation. Brazil: National Institute of Space Research (in Portuguese).

[37] Park, E.S., D.K. Yoon, and Y.W. Choi. 2019. Leave no one behind: Experiences of persons with disability after the 2017 Pohang earthquake in South Korea. International Journal of Disaster Risk Reduction 40: Article 101261.

[38] Ronoh S, Gaillard JC, Marlowe J. Bridging the participatory gap: Children with disabilities and disaster risk reduction. International Journal of Mass Emergencies and Disasters, 2017, 35(3): 271-297.

[39] Sá, E.D., I.M. Campos, and M.B.C.S. Silva. 2007. Specialized educational assistance: Visual impairment atendimento (Atendimento Educacional Especializado: Deficiência Visual). Brasília: Ministry of Education, Secretary of Special Education / Department of Distance Education. http://portal.mec.gov.br/seesp/arquivos/pdf/aee_dv.pdf. Accessed 21 Jan 2022 (in Portuguese).

[40] Sassaki RK. Nothing about us, without us: From integration to inclusion—Part 1 (Nada sobre nós, sem nós: Da integração à inclusão—Parte 1). Revista Nacional de Reabilitação, 2007, 57: 8-16 (in Portuguese)

[41] Sato, M., M. Jaber, R. Silva, I. Quadros, and M.L. Alves. 2013. Mapping the territories and identity of the State of Mato Grosso (Mapeando os territórios e identidades do Estado de Mato Grosso). Cuiabá, MT: Federal University of Mato Grosso Press − EdUFMT (in Portuguese).

[42] Sherman-Morris, K., T. Pechacek, D.J. Griffin, and J. Senkbeil. 2020. Tornado warning awareness, information needs and the barriers to protective action of individuals who are blind. International Journal of Disaster Risk Reduction 50: Article 101709.

[43] Smith, F., E. Jolley, and E. Schmidt. 2012. Disability and disasters: The importance of an inclusive approach to vulnerability and social capital. https://www.sistemaprotezionecivile.it/allegati/1476_Disability_and_disasters.pdf. Accessed 28 Jul 2021.

[44] Smith, F., M. Simard, J. Twigg, M. Kett, and E. Cole. 2017. Disability and climate resilience: A literature review. https://www.researchgate.net/publication/320800956_Disability_and_Climate_Resil-ience_A_literature_review. Accessed 30 Jul 2021.

[45] Sousa JB. What does blindness see? Braille writing and its semiotic nature (O que vê a cegueira? A escrita Braille e sua natureza semiótica), 2015, João Pessoa: Publisher of the Federal University of Paraíba (in Portuguese)

[46] Stough LM, Kang D. The Sendai framework for disaster risk reduction and persons with disabilities. International Journal of Disaster Risk Science, 2015, 6(2): 128-139

[47] Sulaiman, S.N., and A. Aledo. 2016. Natural disasters: Living with risk. (Desastres naturais: Convivência com o risco). Estudos Avançados 30(88): 11–23 (in Portuguese).

[48] Sulaiman, S.N., and P.R. Jacobi. 2013. The challenges and potentialities of the articulation between environmental education and prevention of natural disasters in Brazil (Os desafios e potencialidades da articulação entre educação ambiental e prevenção de desastres naturais no Brasil). Paper presented at the 36th National Meeting of the National Association of Posgraduate Programs and Research on Education—ANPED, 29 September–2 October 2013, Goiânia, GO, Brazil. http://www.anped.org.br/sites/default/files/gt22_3060_texto.pdf. Accessed 15 Oct 2017 (in Portuguese).

[49] United Nations. 2019. Disability and development report. https://social.un.org/publications/UN-Flagship-Report-Disability-Final.pdf. Accessed 13 Jan 2022.

[50] United Nations. 2020. Policy brief: Disability-inclusive response to Covid-19. https://www.un.org/development/desa/disabilities/wp-content/uploads/sites/15/2020/05/sg_policy_brief_on_persons_with_disabilities_final.pdf. Accessed 15 Sept 2021.

[51] UNCRPD (United Nations Convention on the Rights of Persons with Disabilities). 2006. Convention on the rights of persons with disabilities. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html. Accessed 15 Mar 2021.

[52] UNISDR (United Nations International Strategy for Disaster Reduction) Sendai framework for disaster risk reduction 2015–2030, 2015, Geneva: UNISDR

[53] Wilches-Chaux, G. 1993. Global vulnerability (La vulnerabilidad global). In Disasters are not natural (Los desastres no son naturales), compiler. A. Maskrey, 11–41. Ciudad de Panamá, República de Panamá: Red de Estudios Sociales en Prevención de Desastres en América Latina (in Spanish).

[54] Wisner B, Gaillard JC, Kelman I. Wisner B, Gaillard JC, Kelman I. Framing disaster: Theories and stories seeking to understand hazards, vulnerability and risk. The Routledge handbook of hazards and disaster risk reduction, 2012, London: Routledge 18-34

[55] Wolbring G. A culture of neglect: Climate discourse and disabled people. M/C Journal, 2009, 12: 4

[56] WHO (World Health Organization). 2011. World report on disability 2011. https://www.who.int/teams/noncommunicable-diseases/sensory-functions-disability-and-rehabilitation/world-report-on-disability. Accessed 15 Mar 2021.

[57] Zamparoni CAGP. Risks and natural disasters in an urban environment: The example of Cuiabá/MT (Riscos e desastres naturais em ambiente urbano: O exemplo de Cuiabá/MT). Revista Brasileira de Climatologia, 2012, 10: 1-14