The issue of intimacy in long-term care for people with dementia: A nursing perspective

Liliana Sousa , Celso Silva , Mónica Lopo Tomaz

Global Health Economics and Sustainability ›› 2025, Vol. 3 ›› Issue (3) : 111 -116.

PDF (500KB)
Global Health Economics and Sustainability ›› 2025, Vol. 3 ›› Issue (3) :111 -116. DOI: 10.36922/ghes.5130
PERSPECTIVE ARTICLE
research-article

The issue of intimacy in long-term care for people with dementia: A nursing perspective

Author information +
History +
PDF (500KB)

Abstract

Sexuality and intimacy are often overlooked in long-term care settings, especially for elderly individuals with dementia, despite their significant role in emotional well-being and quality of life. This article explores the ethical, professional, familial, and organizational challenges caregivers face in supporting sexual expression in dementia care. This article also discusses the importance of respecting residents’ autonomy while ensuring their safety and emphasizes the need for proper staff training, family involvement, and clear institutional policies to provide a supportive care environment. This article aims to contribute to the ongoing discourse on improving dementia care practices by offering actionable recommendations that promote intimacy as a core element of person-centered care.

Keywords

Intimacy / Dementia care / Long-term care

Cite this article

Download citation ▾
Liliana Sousa, Celso Silva, Mónica Lopo Tomaz. The issue of intimacy in long-term care for people with dementia: A nursing perspective. Global Health Economics and Sustainability, 2025, 3(3): 111-116 DOI:10.36922/ghes.5130

登录浏览全文

4963

注册一个新账户 忘记密码

Funding

None.

Conflict of interest

The authors declare that they have no competing interests.

References

[1]

Bauer, M., Fetherstonhaugh, D., Tarzia, L., Nay, R., & Beattie, E. (2014). Supporting residents’ expression of sexuality: The initial construction of a sexuality assessment tool for residential aged care facilities. BMC Geriatrics, 14(1):82. https://doi.org/10.1186/1471-2318-14-82/TABLES/1

[2]

Benbow, S.M., & Beeston, D. (2012). Sexuality, aging, and dementia. International Psychogeriatrics, 24(7):1026-1033. https://doi.org/10.1017/S1041610212000257

[3]

Bertola, L., Suemoto, C.K., Aliberti, M.J.R., Gonçalves, N.G., De Moraes Rebello Pinho, P.J., Castro-Costa, E., et al. (2023). Prevalence of dementia and cognitive impairment no dementia in a large and diverse nationally representative sample: The ELSI-Brazil study. Journals of Gerontology-Series A Biological Sciences and Medical Sciences, 78(6):1060-1068. https://doi.org/10.1093/GERONA/GLAD025

[4]

Cao, Q., Tan, C.C., Xu, W., Hu, H., Cao, X.P., Dong, Q., et al. (2020). The prevalence of dementia: A systematic review and meta-analysis. Journal of Alzheimer’s Disease : JAD, 73(3):1157-1166. https://doi.org/10.3233/JAD-191092

[5]

Cook, C., Henrickson, M., & Schouten, V. (2022). Palliative care, intimacy, and sexual expression in the older adult residential care context: “Living until you don’t”. International Journal of Environmental Research and Public Health, 19(20):13080. https://doi.org/10.3390/ijerph192013080

[6]

D’cruz, M., Andrade, C., & Rao, T. S. S. (2020). The expression of intimacy and sexuality in persons with dementia. Journal of Psychosexual Health, 2(3-4):215-223. https://doi.org/10.1177/2631831820972859

[7]

De Medeiros, K., & Rubinstein, R.L. (2018). Managing sexuality in long-term care: A new focus for person-centered care. Journal of Aging and Social Policy, 30(5):485-503.

[8]

Ehrenfeld, M., Bronner, G., Tabak, N., Alpert, R., & Bergman, R. (1999). Sexuality among institutionalized elderly patients with dementia. Nursing Ethics, 6(2):144-149. https://doi.org/10.1177/096973309900600207

[9]

Farina, N., Rajagopalan, J., Alladi, S., Ibnidris, A., Ferri, C.P., Knapp, M., et al. (2024). Estimating the number of people living with dementia at different stages of the condition in India: A Delphi process. Dementia (London), 23(3):438-451. https://doi.org/10.1177/14713012231181627

[10]

Fitzroy, A.F., Kemp, C.L., & Burgess, E.O. (2022). “I’m not terribly lonely”: Advancing the understanding of intimacy among older adults. Journal of Aging Studies, 61:101005. https://doi.org/10.1016/j.jaging.2022.101005

[11]

Garrett, D. (2021). Sexual Intimacy and Ageing. United States: Springer International Publishing, p. 65-77. https://doi.org/10.1007/978-3-030-40075-0_6

[12]

Gore-Gorszewska, G., & Ševčíková A. (2023). Trajectories of intimacy in later-life: A qualitative study of Czech and Polish narratives. Culture, Health and Sexuality, 25(10):1324-1339. https://doi.org/10.1080/13691058.2022.2155708

[13]

Grigorovich, A., & Kontos, P. (2020). A critical rethinking of sexuality and dementia. The Routledge Handbook of Disability and Sexuality. England, UK: Routledge, p. 85-96. https://doi.org/10.4324/9780429489570-7

[14]

Grigorovich, A., Kontos, P., Heesters, A., Martin, L.S., Gray, J., & Tamblyn Watts, L. (2022). Dementia and sexuality in long-term care: Incompatible bedfellows? Dementia (London, England), 21(4):1077-1097. https://doi.org/10.1177/14713012211056253

[15]

Haesler, E., Bauer, M., & Nay, R. (2007). Staff-family relationships in the care of older people: A report on a systematic review. Research in Nursing and Health, 30(4):385-398. https://doi.org/10.1002/nur.20200

[16]

Hatzidimitriadou, E., & Phellas, C. (2020). Sexuality and aging in institutional settings. Ageing Int., 45(2):167182.

[17]

Horne, M., Youell, J., Brown, L.J.E., Simpson, P., Dickinson, T., & Brown-Wilson, C. (2021). A scoping review of education and training resources supporting care home staff in facilitating residents’ sexuality, intimacy and relational needs. Age and Ageing, 50(3):758-771. https://doi.org/10.1093/AGEING/AFAB022

[18]

Lichtenberg, P.A., & Strzepek, D.M. (1990). Assessments of institutionalized dementia patients’ competencies to participate in intimate relationships. The Gerontologist, 30(1):117-120. https://doi.org/10.1093/geront/30.1.117

[19]

Mahieu, L., Anckaert, L., & Gastmans, C. (2017). Intimacy and sexuality in institutionalized dementia care: Clinical-ethical considerations. Health Care Analysis : HCA : Journal of Health Philosophy and Policy, 25(1):52-71. https://doi.org/10.1007/S10728-014-0287-2

[20]

Mattiasson, A.C., & Hemberg, M. (1998). Intimacy--meeting needs and respecting privacy in the care of elderly people: What is a good moral attitude on the part of the nurse/carer? Nursing Ethics, 5(6):527-534. https://doi.org/10.1177/096973309800500607

[21]

Morris, L.W., Morris, R.G., & Britton, P.G. (1988). The relationship between marital intimacy, perceived strain and depression in spouse caregivers of dementia sufferers. British Journal of Medical Psychology, 61(3):231-236. https://doi.org/10.1111/j.2044-8341.1988.tb02784.x

[22]

Naheed, A., Hakim, M., Islam, M.S., Islam, M.B., Tang, E.Y.H., Prodhan, A.A., et al. (2023). Prevalence of dementia among older age people and variation across different sociodemographic characteristics: A cross-sectional study in Bangladesh. The Lancet Regional Health-Southeast Asia, 17:100257. https://doi.org/10.1016/J.LANSEA.2023.100257

[23]

Richter, D., Brahler, E., & StrauB, B. (1998). Handbook of Sexuality-related Measures. Thousand Oaks, CA: Sage Publication.

[24]

Roach, S.M. (2004). Sexual behaviour of nursing home residents: Staff perceptions and responses. Journal of Advanced Nursing, 48(4):371-379. https://doi.org/10.1111/j.1365-2648.2004.03206.x

[25]

Roelofs, T.S., Luijkx, K.G., & Embregts, P.J. (2019). Love, intimacy and sexuality in residential dementia care: A spousal perspective. Dementia (London), 18(3):936-950. https://doi.org/10.1177/1471301217697467

[26]

Williams, A. (2001). A literature review on the concept of intimacy in nursing. Journal of Advanced Nursing, 33(5):660-667. https://doi.org/10.1046/j.1365-2648.2001.01701.x

[27]

Wiskerke, E., & Manthorpe, J. (2019). Intimacy between care home residents with dementia: Findings from a review of the literature. Dementia (London, England), 18(1):94-107. https://doi.org/10.1177/1471301216659771

PDF (500KB)

63

Accesses

0

Citation

Detail

Sections
Recommended

/