Improvement of a BCI-enabled Boccia ramp through a patient engagement strategy

Abstract

Aims:The right to play is a basic human right. However, sport participation is often limited for children with complex motor disabilities. We developed a brain-computer interface (BCI)-enabled Boccia system that allows children with severe motor disabilities and communication difficulties to play independently. The purpose of this study was to partner with persons with lived experience (PWLE) to improve the BCI-Boccia system. Methods:Following the Strategy for Patient-Oriented Research framework, we engaged seven PWLE. In the first session, we gathered comments from the PWLE, which were translated into a list of required features. The software was developed using an Agile approach. The second session involved a demonstration to collect additional feedback. In the third session, two PWLE tested the system in person. Engagement was evaluated using the Public and Patient Engagement Evaluation Tool (PPEET). Results:Comments from the PWLE focused on improving the software controller and the mechanical stability of the ramp. New software controllers for coarse and fine movements were designed, and a new base was developed to enhance stability while allowing faster assembly and disassembly. The PPEET confirmed that PWLE felt their suggestions were considered and that sufficient resources were provided to support their participation. Conclusion:We demonstrate that a patient engagement strategy can inform and facilitate improvements to a BCI-enabled Boccia system. Involving diverse PWLE throughout the design cycle may improve accessibility and user adoption in disability sports. Inclusive participation likely helps ensure that improvement efforts directly address the needs of end users.

Keywords

Brain-computer interface / inclusive sports / Boccia / patient engagement / persons with lived experience

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