Issues of children with disabilities registered as disabled

Abstract

Aim. To analyze the medical and social characteristics of children's disability at the stage of primary medical and social care in the polyclinics of Kazan.

Methods. 185 case reports of development of children with disabilities aged 0 to 17 years were analyzed as well as the questionnaires for their parents and 96 case reports of healthy peers of the same age group based on the data from children polyclinics N. 9 and 7 of Kazan. Relative values were calculated to process the results.

Results. The conducted analysis revealed that children with the status of disabled persons were more often born in aged and young mothers, with pathological pregnancy and first birth. In the structure of disability causes, psychiatric disorders and nervous system diseases are prevailing. Disabled children acquire acute diseases more often than their healthy peers that causes additional expanses for the family, including those due to the care for acutely ill child, and requires additional provision with medications. Individual lessons in the rehabilitation of a child with disabilities require additional financial investments from the family budget. We revealed the need for implementation of educational courses for the parents of disabled children due to that every second family did not have specific knowledge and skills of care and rehabilitation, when a child had functional limitations found.

Conclusion. Families with children with disabilities in the status of a disabled child need additional assistance in solving medical and social problems.

Keywords

children with disabilities in the status of a disabled child / medical and social problems

References

[1] Alʹbitskiy V.Yu. Aktualʹnye problemy sotsialʹnoy pediatrii. (Actual problems of social pediatrics.) Moscow: Soyuz pediatrov Rossii. 2012; 355 p. (In Russ.)

[2] Альбицкий В.Ю. Актуальные проблемы социальной педиатрии. М.: Союз педиатров России. 2012; 355 с.

[3] Bayburina Ya.N. Problema detskoy invalidnosti v Rossii. (Issue of children’s disability in Russia.) Sb. statey Mezhdunarodnoy nauchno-prakticheskoy konferentsii. Ufa. 2017; 15–17. (In Russ.)

[4] Байбурина Я.Н. Проблема детской инвалидности в России. Сб. статей Международной научно-практической конференции. Уфа. 2017; 15–17.

[5] Federalʹnaya gosudarstvennaya informatsionnaya sistema. Federalʹnyy reestr invalidov. (Federal state information system. Federal registry of disabled people.) https://sfri.ru/ (access date: 05.10.2019). (In Russ.)

[6] Федеральная государственная информационная система. Федеральный реестр инвалидов. https://sfri.ru/ (дата обращения: 05.10.2019).

[7] Denner V.A., Fedyu­nina P.S., Davletshina O.V., Nabatchikova M.V. Scien­tific review of the issue of child disability as a medical and social problem. Molodoy uchenyy. 2016; (20): 71–75. (In Russ.)

[8] Деннер В.А., Федюнина П.С., Давлетшина О.В., Набатчикова М.В. Научный обзор вопроса детской инвалидности как медико-социальной проблемы. Молодой учёный. 2016; (20): 71–75.

[9] Federalʹnaya sluzhba gosudarstvennoy statistiki. (Federal service of state statistics.) http://www.gks.ru/ (access date: 05.10.2019). (In Russ.)

[10] Федеральная служба государственной статистики. http://www.gks.ru/ (дата обращения: 05.10.2019).

[11] FGBU “Federalʹnoe byuro mediko-sotsialʹnoy ehkspertizy” Ministerstva truda i sotsialʹnoy zashchity Rossiyskoy Federatsii. (“Federal Bureau of Medical and Social Expertise” of the Ministry of Labor and Social Protection of the Russian Federation.) Moscow. 2019; fbmse.ru (access date: 04.10.2019). (In Russ.)

[12] ФГБУ «Федеральное бюро медико-социальной экспертизы» Министерства труда и социальной защиты Российской Федерации. М. 2019. fbmse.ru (дата обращения: 04.10.2019).

[13] Baranov A.A., Namazova-Baranova L.S., Terletskaya R.N., Antonova E.V. Problems of Children's Disability in Modern Russia. Vestnik RAMN. 2017; 72 (4): 305–312. (In Russ.)

[14] Баранов А.А., Намазова-Баранова Л.С., Терлецкая Р.Н., Антонова Е.В. Проблемы детской инвалидности в современной России. Вестн. РАМН. 2017; 72 (4): 305–312. DOI: 10.15690/vramn823.

[15] Sbornik MZ RF. Osnovnye pokazateli zdo­rovʹya materi i rebenka, deyatelʹnostʹ sluzhby okhrany detstva i rodovspomozheniya v Rossiyskoy Federatsii. (Collection of the Ministry of Health of the Russian Federation. Key indicators of maternal and child health, activity of the child welfare and obstetric care service in the Russian Fe­deration) Moscow. 2019; 169 р. (In Russ.)

[16] Сборник МЗ РФ. Основные показатели здоровья матери и ребёнка, деятельность службы охраны детства и родовспоможения в Российской Федерации. М. 2019; 169 с.

[17] Vsemirnaya organizatsiya zdravookhraneniya i Vsemirnyy bank. Vsemirnyy doklad ob invalidnosti, 2011. (World Health Organization and World Bank. World Disability Report.) http://www.who.int/disabilities/world_report/2011/summary_ru.pdf (access date: 05.10.2019). (In Russ.)

[18] Всемирная организация здравоохранения и Всемирный банк. Всемирный доклад об инвалидности, 2011. http://www.who.int/disabilities/world_report/2011/summary_ru.pdf (дата обращения: 05.10.2019).

[19] Ministry of Labor and Social Protection of the Russian Federation. Official website. http://www.rosmintrud.ru/social/inva­lid-defence (access date: 05.10.2019). (In Russ.)

[20] Министерство труда и социальной защиты РФ. Официальный сайт. http://www.rosmintrud.ru/social/invalid-defence (дата обращения: 05.10.2019).

RIGHTS & PERMISSIONS

Sadykova D.I., Solov’ev N.A., Kulakova G.A., Kurmayeva E.A.